Saturday, March 17, 2012

More appointments

Well, Yesterday, we spent a grueling 12 hours going to six appointments for Mike. Oi Vey! we both are wiped out from that. We left about 6 am and got home about 9 pm. The kids did not have school that day so their grandparents,  Gerry (gramp) and Linda (Bubs) came to get them and kept them occupied for the day in Santa Monica.

He saw a new doctor, a hematologist, whom we both liked, who was on board with treating Mike with bleeding disorder medicine aggressively during any of the procedure days. He was funny and had a good bedside manner.

But, he wants us to come back on Tues to do a special test to check how Mike's medicine works in his system. We arrive and he initially gets a blood draw, then we give him his medicine, then he gets his blood drawn again, then after one hour, then at 6 hours. So another long day in LA on Tues. Then back on Wed am at 6:30 for the embolization procedure. This procedure will admit him to the hospital and there he will stay thru his brain surgery and recovery.

Mike wasn't able to bank his own blood yesterday. His pulse was too high. That was a bummer, but better to be safe. They said to draw blood when it is too high is a risk, one that we don't want to take right now.

He had another MRI. He said that was fun, NOT! He dislikes them anyway, but for this one, they were almost done and they had an IV in with the dye (called an MRI with contrast) and the tube opened and sprayed the dye all over Mike. they had to stop and pull him out, get him cleaned up and redo that last section of the MRI. POOR GUY! Poked and prodded all day.

Today, we got up to go to temple. Our community said a prayer for Mike and for our family. It was so nice to be able to gain strength and comforting words from them.

We are in the countdown for the last few days and in some ways, it doesn't seem real, but in others, it is OH so very real and we are going to turn around and it is going to be here.

We keep hearing that we are in very good hands at UCLA. Yesterday, we finally got to see the bottom level of the hospital. WOW! it is so posh and impressive. From what I can see, it looks like he would be walking into a very nice hotel. I hope the rooms, care and service are just as nice :o).

I guess that is it for now.
Until later....
Leslie

4 comments:

  1. Poor Mike - what an ordeal! Tell him he is in my prayers! Love, Marcie

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  2. Hi Leslie,
    I just heard about what's going on from Cathy Kubo. I hope everything goes well. I have been in your shoes and it's not a fun place to be. After everything that happened to Tim, in all my reading on the subject, UCLA was always brought up as an excellent hospital for dealing with brain tumors. Tell Mike he is in my thoughts and I'll be checking back for updates.
    Carole Eckmayer

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    Replies
    1. Hi Carole,
      Thanks for the message. I have read the message to Mike and we both thank you for thinking of him.
      Leslie

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